Keep up to date on how your information is used

Research is important for developing better diagnostics and treatment. When you sign a broad consent form, you give researchers at Sørlandet Hospital permission to:

• register relevant medical record information and/or
• use biological material in a research or quality registry.

The information may be used in several projects within a specific field, such as cancer. Since it is not possible to know which projects will be carried out in the future, everyone whose information is registered is given the opportunity to stay up to date on how their information is used.

On this page, you will find an overview of the registries at Sørlandet Hospital and what they are used for.

If you wish to opt out or withdraw your consent, you can contact the project manager for the relevant registry.

All use and disclosure of the information must be approved in advance by the Regional Committee for Medical and Health Research Ethics and the Data Protection Officer at Sørlandet Hospital.

When you have given broad consent, the hospital may collect information from several sources—for example, medical records, test results or questionnaire data. This information is collected in a database (a registry) maintained and updated by the hospital’s professional community.

This is how we protect your privacy:

• Names and national identity numbers are replaced with a code.
• Only a small number of people have access to the code key.

Broad consent often also means that biological material may be stored in a research biobank. The material may then be used in future research projects within the area to which you have consented.

NorAmp-Rehab is a research registry that aims to increase knowledge about leg amputations and rehabilitation in Norway.

Noramp-rehab